Friday, July 3, 2009

Short Week results in Short Update

Hello All from sunny and hot North Carolina. Annette and I had a shorter week this week up at Duke due to the 3 day weekend the hospital had planned for their staff due to the July 4th holiday. Happy birthdays go out to Annette's mother and my brother on July 4th by the way.

The treatments and doctors visits, along with my blood work, all went well this week. I continue to feel good, look great, and so far, knock knock knock on wood, no real ill affects of the chemo or the radiation treatments this second time around. I am now also over the hump having finished 16 treatments and have just 12 to go. This is a total of 44 radiation treatments so far but God has been good to me so far and is answering many of the prayers you have all been saying on my behalf. Annette and I continue to thank you for that and feel stongly that without those prayers I wouldn't be in as good a shape as I am now.

We took one opportunity to visit with Annette's youngest son, Kelly's, family for dinner on Monday night. Other than that we played 9 holes of golf once and went to the movies to see Public Enemy (I wouldn't recommend it). We were able to come home on Thursday mid-day. We will have a nice 3 day weekend but have no real plans - laying low since we are gone all week each week. Just 2 & 1/2 weeks to go now.

Guess that's it. Told you it would be short.

Drew & Annette

Friday, June 26, 2009

A sore throat is about it

Family and Friends



I just finished my second full week of treatments. I'm almost 1/2 through, 12 out of 28 done (OK 42.8%). And, so far so good. I am still feeling human, still have an appetite, haven't gotten tired, my strength and endurance are about where they were, and, of course, I look marvelous. The only problem I am experiencing right now is like a bad sore throat you get during the winter along with some occasional restriction problems passing food. It isn't serious yet but a bit difficult.



One of the doctors this week put me on a liquid Lidocane which helps to numb the throat right before I eat. It helps for sure. It is short lived but gets me through meals. As long as the situation doesn't get any worse I should be able to deal with it using the Lidocane. They also issued me some pain pills, vicodin, which is the same stuff Dr. House is hooked on in the TV series House. I hope to not get to the point of needing those.



We had a pretty good week. On Monday evening we had dinner with Annette's youngest son, Kelly, and then got a chance to watch him rehearse with the Big Band he is the lead singer with. On Tuesday evening we had a chance to meet and catch up with an old shipmate of mine from boot camp. We just found each other via Facebook and here he lives very near Durham where I go for my treatments at Duke. We hadn't seen each other in 39 years. We had a great time catching up and plan to meet again. He hasn't seen me in 39 years and even he said I look marvelous, just like I did way back in Cape May, NJ 39 years ago. OK so I lie a little bit now and then. I've put on a few pounds since then. However, I do have more hair now that he would recall back then!!!



Also on Tuesday we killed some time going over to Highpoint, NC to visit the world's largest furniture store. Highpoint is the center for furniture in the US in case you didn't know. We had bought some furniture there back in 1992 when I was finishing up my career in the Coast Guard. At that time it was huge, 250,000 sq ft of space. Chump size compaired to today as it is now 1.6 million sq ft of space. It is something to visit, and a great place to shop, if you ever need furniture. Check their web site out at FurniturelandSouth.com - it is an experience for sure.



Annette came home on Wednesday night after my treatment to attend her final board meeting as the Chairwoman for the local American Red Cross after her two year tenure. I drove her down, stayed over night, drove back on Thursday and home again this am. All went well for both of us.



Guess that is it for another week. Keep those prayers coming my way, they certainly are working!!!!



Drew

Friday, June 19, 2009

"I'm so lucky"

Every time my brother, Rocky, and I talk he keeps saying to me, kiddingly, "you're so lucky" going through all these treatments. And, while he is just saying it in fun, today I got a real sense that he may be more of a prophet than I gave him credit for being. I just finished my first full week of radiation treatments and so far everything is going great (knock on wood). I am now 25% through my second round of treatments (7 down, 21 to go) and so far so good. I am not experiencing any nausea nor tiredness so far. I truly believe that all the prayers that are being said on my behalf have had a very positive affect on my situation. Keep it up everyone, please.


The reason I say I am lucky is in part due to a woman I spoke with just today at the radiation treatment waiting area at Duke. Her husband was in being treated at the time. I had been talking with another woman when this one overheard me and came to talk with me. She said her husband (close to my age) had the same type of treatments I had before, he even had the same team of doctors I have, and he had his esophagus removed way back in October, a full 8 months ago. Well he hasn't been able to eat ever since, has lost 60 lbs., was pushed in on a wheelchair by his wife, hasn't felt good since the surgery, and has been on a feeding tube ever since the operation. He looked terrible and old. His wife said to me "they wish he never had the surgery." His cancer has come back, it is spreading, and his prognosis isn't good. Then on top of all that she, who was probably in her early 50's, said the really sad part is they have a 13 month old "surprise" baby. Shocking. It was a real awakening for me. All I could think of is that could have been me. If God hadn't stepped in when he did who knows where I would be today. Thanks again to all of you who continue to pray for me.


On Wednesday I saw one of my medical oncologist who was very encouraged by my progress. Yesterday I saw my radiation oncologist who spent about 10 seconds looking at my bare chest and back and said "you look great." You and I both know that what he meant to say was "you look marvelous:)" So, yes Rocky, I think you're right, I am so lucky!!!!!


Now I think sometimes my mother doesn't really believe me when I say I am feeling good so I am going to attach a couple of new pictures that were taken a week ago when we took our boat out with Annette's oldest son's family up on Jordan Lake about 1.25 hours from our home. That's me tubing and waterskiing. This week Annette and I played golf twice during the day up in Durham, went in the pool at the hotel, went out for dinner with Annette's oldest brother, Ike and his wife Diana, and last night we went to a Duham Bulls (Triple A farm club) baseball game. See Mom, I really do feel good.


I keep on knocking on wood each time I say I am feeling good because during the first round of treatments back in February/March, I made the mistake of telling one of my doctors that "if this is as bad as it gets I can handle this no problem." His response was "it can change in a hurry." Well all of about 2 hours later, after an allergic reaction to one of the chemo drugs, I was hospitilized for two days with a fever, terrible chills, and a horrible all over body rash. Then I felt like hell for the next 5 weeks. I've learned to keep my mouth shut or knock on a lot of wood.


That's it for this update. Annette and I hope you are all well. Thanks to all who keep sending us cards of encouragement and, of course, for your continued good wishes and prayers. Happy Father's Day to all you dads out there.


Signed

One Lucky Guy, Husband, and Dad


Saturday, June 6, 2009

And now for Round Two!

Hello Family and Friends

Just an update to let you know what transpired this past week. Annette and I ended up taking two daily trips up to Duke on Thursday and Friday. We would have stayed overnight if we had know we would need to return on Friday but we didn't find that out until we were there on Thursday. This was to learn about the planned next round of treatments for me since surgery is out of the picture. Well, I'm going back to radiation and chemo treatments which will likely be 6 weeks long again. It was so much fun the first time we thought we might do it again!!! Oh well, the alternative is much worse.

We met with the chemo and radiation oncologists on both days. Also I had one more CT/PET scan on Thursday and a CT/Sim scan on Friday. Fortunately, this time, the PET scan did show the new tumors up at the top of my esophagus and NOwhere else. The chemo doctor said she believes that they (about 12 small tumors) showed up this time (bright images of radioactive sugar) where they didn't a month ago is likely due to the fact that the surgeon had taken several biopsyes (sp?) of them just prior to the planned surgery last month. The act of doing that likely created scarring and, as a result, the tumors showed "activity" which in turn allowed for the sugar to attach to them and be noted. Sounds plausible huh?

As a result of that, on Friday I had to have the CT/Sim scan wherein the radiation team draws the tattoos on my body as reference points and the rad doc will then do his "planning" on where the techs are to shoot the radiation treatments this time around. It was so much fun to get two more IV's this week for the contrast solution and to get to drink the lovely tasting contrast solution, twice more, as well. For those of you who know what I'm talking about, that stuff taste great huh:(?

I start my new round of 5 1/2 weeks of radiation treatments next Thursday. I will only be taking one chemo drug this time, orally (7 double whopper sized pills/day), which is Xeloda. I pray that I may not experience as much nausea from this as the last time as it was the infusion chemo drugs that made me feel so crummy.

By the way, thank you to all of you who have been paying your taxes on time. My Xeloda alone was just over $4K this time not counting the other drugs they gave me for nausea prevention. Oh, I am also planning on taking a ginger supplement daily based on a recent article in the paper my daughter sent me showing the positive affects of ginger for chemo patients fighting nausea. I'll take anything to not feel like I did before.

We may try and do it a little different this time and maybe drive up on Monday return home on Tuesday, return on Wednesday and stay until Friday. This will give us at least a little time to take care of the house and our plants. That way we will only have to stay over 3 nights vs. 4 or 5 depending on if we went up on Monday or Sunday night. It will be a pain again, all this traveling, but again, the alternative is much worse.

We continue to ask for your prayers and well wishes for us as we continue to travel this bumpy path to full remission (hence the title of this blog). The love and support we have received so far is truely amazing and much appreciated. God is guiding us down this path to remission. We always love to hear from you tooooooo...

Love
Drew & Annette

Thursday, May 28, 2009

Confusion Say

All



Just a quick update to let you know what transpired yesterdat at Duke. We were scheduled to meet with my surgeon and the medical oncologist. Met with the oncolgist first. She was totally mystified as to why my previous 6 weeks of chemo hadn't taken care of these "newly discovered" small tumors at the top of my esophagus while they had been addressed everywhere else. She said they didn't show up in the PET scan due to their small size (< 1cm).

Bottom line, yesterday wasn't all that productive. The surgeon basically said he is done with me unless I need something in the future like my esophagus streached or possibly a feeding tube installed. Otherwise, he says they have no plans to operate on me. The last thing he said to us was that he will be "praying for me." I'm not sure how I should interpret that but I will look it positively.

So back over to the medical oncologist, she then contacted the radiation oncologist to see if I am still a viable canidate for more radiation treatments. He said yes that it is "technically fisable" and that since this area is far enough away from the earlier treated area they can still zap me.

As a result, they scheduled me for one more PET/CT scan next Thursday and then more consultations with the medical and radiation oncologists after that to discuss the new "plan." They suspect it may be radiation (shorter term due to the small size of the tumors) and just oral chemo which was used to enhance the effect of the radiation. This is not the one that got me sick. I suspect that this round of treatment won't be near as bad as the earlier one. And, of course, all of the doctors said "you look marvalous." What can I say - just good genes I guess. I have put back on at least 16 lbs and my strength is back up. I would say I'm probably 85% again. Put me in coach - I'm ready to play!

Till next time - be well, be safe, have fun, stop to smell the roses, and God Bless.

Drew

Wednesday, May 20, 2009

God's Intervention

Hello All:

I'm sure many of you are wondering what the heck is going on. I was supposed to be in the hospital now recovering from surgery. Well, if you don't believe in God having the almighty power to step in and change things when necessary then I don't know what kind of proof you will need. I, for one, Annette for two, and my daughters for three and four believe He made his move this past Monday when dealing with little ole me.

My two daughters, Jackie and Robin, were here for the surgery. They, Annette and I, went up to Durham Sunday afternoon, checked into a hotel and were ready for the 5 hour surgery Monday am. I checked into Duke at 7:30 am for prepping for the 9:30 surgery. Everything was going as planned . All the IVs were connected, along with other preparations, (even had an epidural in my back for pain,) had markings on my body where they were going to cut, and the gas doctors had done their thing. I was out and ready for surgery in the operating room.

My surgeon, God bless him, had to do one more endoscopy before he began to make the incisions. Well, when doing so he found more "small active cancer tumors" in the upper end of my esophagus. This was the area where he had planned to reattach the stomach after he had also taken a portion of that. Had he gone ahead and cut he would not have had any place to reattach it that was healthy, and who knows what would have happened next. The surgeon used the term "it could have been disastrous" had they continued. He called off the surgery and now we are going to drop back and look for a new course of action that will likely include more chemo treatments but whether radiation is also called for isn't clear right now. We have to return next Thursday to find out the new strategy they will plan for me.

I was held overnight in the hospital as I had nausea from the anesthetic, and wasn't able to urinate. They had to install a catheter which was also a lot of fun. But, bottom line is we are back home now, I am still fully intact and we are waiting to find out what happens next.

Back to God for a minute. I am sure He stepped in at the last minute to stop this surgery as it was the wrong thing to do. This may have been as a result of the many prayers I was receiving from many of you and others as well. The fact that this is also a "teaching hospital" may also benefit others in the future. I am only assuming there were interns present that may have learned from this whole episode and as a result maybe they will remember it in the future and it may result in someone else being saved - who knows. I just know that God stepped up at the last minute and made a great save. Thank you everyone for your prayers.

Some of you may be wondering why they didn't see these cancer cells before, seeing how I had 3 endoscopies before this, (one as recently as 3 weeks ago,) and that remains a mystery. The cells may have been hidden behind something else, or were just too small, or who knows. For whatever reason they weren't noted earlier. I'm just glad he found them when he did. We don't see this as a setback but are thankful that we have the team we do to help us fight this thing. I will let you know more as we know more. Till then, please keep the prayers coming - they helped before and will again next time.

Yours
Drew

Wednesday, May 13, 2009

Surgery Next Week

Hello All.



Just a brief update to let you know that next Monday is my surgery day. Tomorrow, 5/14, Annette and I are going up to Duke for my pre-op consultation. We'll be meeting with my surgeon again and the gas doctor (don't ask me to spell anesthesiologist - am I close?).



Then in the late afternoon we will be picking up Robin, my youngest daughter, who is flying into Raleigh (from Pasco, WA) and is coming to visit before, and after, the surgery. My oldest daughter, Jackie, is arriving on Saturday, and will also be here up until Wednesday after my surgery. I hope I do well, maybe I should study up some so I don't mess up while they are here. It will be nice to see them both and I want to thank them for making the efforts to come AND to their husbands, Mark and Rick, for watching their kids thereby allowing them time to come for a brief visit.



The surgery will be around 5 hours long. They will remove my esophagus and the upper 1/3 of my stomach and then reattach the remaining part of my stomach to the upper end of where my esophagus was. Sounds kind of cool huh? However, warning, don't try this at home. I am a little nervous but not too bad. We are very confident in the hospital and my surgeon, I just have a little chicken in me. I'm not looking forward to the feeding tube I will have temporarily installed, or the expected 10-14 days in-patient stay, but we will do what we have to do to get well. I/we still have a lot of living to do and might as well get started with it today!



I'll keep you posted on the back side once I can via the blog or e-mail. Annette will have her cell phone but probably only be able to have it turned on when she is not at the hospital. Her number, should you want it, is 910-286-3434. Thanks in advance for any positive thoughts and prayers you might send our way.



Oh, one more thing, we just took a brief trip south to visit Jackie's family and attend their oldest daughter, Emma's, First Communion. They live in Pensacola, Florida. Then we slipped over to Biloxi for a couple of days of gambling at a very nice casino there, the Beau Rivage. We had a good time. I will attach a couple of pics from the trip - see I told you I look marvelous! That's me on the rope swing!



Yours

Drew